hep c and ALIVE!

Monday, April 17, 2006

interferon treatment question

It's been almost a year since I finished treatment. I feel totally normal. I have for many months. It's bizarre to think I felt so weird-depressed-foggy-for so long yet now am completely normal.

anyone else experiencing this??

Saturday, April 15, 2006

Yet ANOTHER beautiful day! Sometimes I almost forget I have a serious liver disease. Most times I'm aware that life is good and people are good and I have much more I want to accomplish on this earth before I go. Let's see...swimming with whales, safari in Africa, dogsledding, and above all sharing with others about hep C and how we STILL have the option to be happy and live a great life. It's so true! I have cirrhosis and thought I was going to die. Now I know I can live many years without it affecting my quality of life. Still waiting for my book to be released. I'll let you know-
have a wonderful day,
suzy

Friday, April 14, 2006

empowerment idea: Rest when you need to

Hey yall,

Since I usually have no hep C symptoms, it sometimes surprises me when I do. The last couple days I've been tired. Today, real tired. Days like this I wish I had cable TV so I could just be a couch potato! I've been told to rest if needed, so I do. I'm just so grateful this is infrequent, and I don't have other symptoms! And I continually remind myself things could be much worse- I could have cancer, or lost my legs, or another more devasting illness. And since I'm not on treatment anymore, hopefully this "spell" will be short.

Some good news: My new book, Hepatitis C Through A Patient's Eyes, is almost finished! It's just a matter of putting the cover with the book, running a test copy, then ordering my copies. I'm excited! I'll let everyone know when the "big day" is.

Now I'm taking my dog to the dog park, sitting in the sun and resting some more.

Take care,
Suzy

Wednesday, April 12, 2006

message of the day

HI!

It's a beautiful day in North Carolina. Today I spoke about hep C at a substance abuse treatment center. It went great and was SO fulfilling! What a wonderful thing to be able to share my experience with others, in hopes they can be tested and treated, if needed, before their disease progresses too far. Our nonprofit organization, Hepatitis C Empowered, is committed to providing education to our community. We had our 1st awareness event Friday night and talked to 75-100 people. A big start on a huge project. Stay tuned for more!

Have a great day,
Suzy